On Friday night we went to our first meeting for the Epilepsy Alliance of Orange County. We went for the Epilepsy 101 which is any and all info about Epilepsy and surgeries to cure it and things along those lines. After that was over, we went to the general meeting. They had a doctor there who spoke about treatment that doesn't involve meds. It was all very informative and scary at the same time. We met some kids who have Epilepsy and heard stories from some parents about their kids. We also met adults who have been recently diagnosed as well. Hayley stayed with us the whole time but Cassidy and Kendall went to day care. The neat thing is that all the workers are CPR certified and trained in how to help seizure victims. One of the girls there was 19 and had the type of Epilepsy that Cass has, it was refreshing to see the future of this disease, it seems so scary. They have monthly meetings and additional meetings available as well, one of them coming up is getting to meet and having the opportunity to buy seizure dogs, they are trained dogs who help children and adults who have seizures, they told us about this one dog who belongs to a little boy and when he has a seizure, the dog moves harmful objects away, lays near his head to make sure he doesn't hit anything and can even dial 911. Another dog was a small dog that an older lady wears in like a baby pouch on her chest. The dog can actually detect that she is going to have a seizure 3 minutes before it happens. The dog barks to let her know so she can find a safe place to sit or lie down at. So cool!!!!! We also found out that they do make a bed sensor that will alarm if Cass has a seizure in the middle of the night.....but it is also $600!!!!! It is a great organization though and if anyone would ever like to come and join us in a meeting, you are more than welcome, there was friends and family members there as well so they can be a support system :)
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